About Our Organization
ABOUT ALPORT SYNDROME
Alport Syndrome is a rare hereditary kidney disease that causes a decline in kidney function, hearing loss and vision problems. The disease leads to kidney failure for most boys by the time they reach their 20s. Girls are affected too, with some impacted similarly to boys but most seeing more mild disease progression.
An Alport Syndrome diagnosis devastates families because it often affects multiple family members in every generation. There is no cure for Alport Syndrome. There is no treatment proven to prevent kidney failure in Alport Syndrome patients.
ABOUT THE ALPORT SYNDROME FOUNDATION
The Alport Syndrome Foundation (ASF) is the leading non-profit organization in the United States serving and giving a voice to the Alport Syndrome community and has grown to become an international presence in outreach, education and research.
For more information visit the Alport Syndrome Foundation's website.