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Team "Gotta Pee" at Josh Billings 2018
Robert Gyurjan


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My Fundraising Goal:
$10,000.00
Money Raised to Date:
$860.00
 
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Please support team "Gotta Pee" at the Josh Billings on September 16, 2018

Join me in raising funds to benefit the Alport Syndrome Foundation and in honor of patients with this rare hereditary kidney disease.


THIRTY-EIGHT MILES MAY SAVE LIVES

People with healthy kidneys don’t usually think about their kidney function until they “gotta pee”. For those with kidney disease, peeing is something they hope they’ll always be able to do.

This is the case for Robert Gyurjan, a man living with Focal Segmental Glomerulosclerosis (FSGS), and the DiMouro family who live with a rare and hereditary disease called Alport Syndrome. Both diseases cause a slow breakdown of the kidneys, often leading to kidney failure. The future of a person living with either disease is wrought with uncertainty and fear.

Before his diagnosis, Robert confided in his co-worker Margaret DiMouro about his struggles and learned about her family’s experience with kidney disease. After hearing that Margaret’s young granddaughter was also diagnosed with Alport Syndrome, Robert decided he wanted to help make her future better.

On September 16, Robert will be joining 500 hundred teams in the 42nd Josh Billings Triathlon in the Berkshires. His goal is to raise $10,000 for kidney research before the 27 mile bike ride, 5 mile canoe/kayak/paddleboat ride, and 6 mile run.

A donation to his fundraiser, “Gotta Pee!” For Healthy Kidneys, will help raise awareness of Alport Syndrome (allowing for better diagnosing of future patients) and will help to fund current efforts to find a cure and better treatments for this disease.
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